Christine has over 35 years’ experience of working with people with learning disabilities and their families. During this time, she has worked in the not-for-profit sector as well as health and social care services with a focus on the development and management of services. Christine has also been involved in a number of research projects. Central to her work has been developing ideas alongside people with learning disabilities and their families, partnership working and person-centred approaches. She was a member of the National Valuing Families Forum for over ten years.
She worked at the Foundation for People with Learning Disabilities for 10 years where her particular areas of interest were planning with families, improving the quality of support, older people with learning disabilities and the development of social and community networks.
Christine says ‘I have set up Together Matters as I believe that talking, planning and working together help people to find new approaches to overcome hurdles and can lead to people with learning disabilities getting good lives. I hope you find our ideas and information useful and feel inspired to get in touch to work together.’
Katy worked as a quality checker for over five years and also works as an advocate for other people with learning disabilities. In both roles she has used her skills and knowledge to support people to speak up about the things they are not happy about. Katy then makes sure the right person hears about these issues so that changes can be made and people’s lives get better.
Katy also has skills in making information easier to read and worked on the wording and pictures of I’m Thinking Ahead.
Katy says: ‘I visited a young woman last year who was having problems with staff and having a tough time. I talked to her and listened to her, which is so important, and wrote down what she said in a report. I went back this year and found that things were getting better and she was being listened to. Doing quality checking is hard work but I love to see people getting better support and having a good life.’
Nick was a member of the quality checker for over three years and has a great understanding of what good support looks like. He has a talent for finding out what people want from life.
Nick also has skills in making information easier to read and worked on the wording and pictures of I’m Thinking Ahead.
Nick says: ‘It’s very important to me that people with learning disabilities get the right support and that they are treated equally and as an adult. They just want one thing in life, to be respected for who they are. I’m a very passionate person and that’s why I do the job that I do.’
Frankie works with the Quality Check team to support quality checkers in looking at services and thinking about how they could improve. She has been a support worker to people living in their own homes for more than ten years and has great skills in helping people make choices and making sure people with complex support needs are included.
Frankie says ‘I have always loved being a support worker; meeting different people and working alongside them to make positive and meaningful changes. Understanding a person’s communication is so important in helping them have a good life. I think being a good support worker takes a lot of skills and openness to trying new things and in this role I can share my ideas with organisations providing support.’
Pat has been a passionate and leading member of the Carers with Learning Disabilities Network for over ten years and represented the work of this group on the National Valuing Families Forum. She regularly speaks about the experience of people with learning disabilities who have a caring role and advocates to improve support for this group of carers.
Pat has also been a member of the GOLD (Growing Older with Learning Disabilities) group for many years and has raised awareness about the issues faced by people as they grow older, including living with dementia.
Cindy worked with Christine to run peer support groups for older people with learning disabilities to talk about growing older and living with dementia and to develop the Talking Together resource. Cindy is very creative and loves devising activities to help people talk about their experiences, remember things from their past and learn new ways to help them cope with difficulties in their lives (such as becoming forgetful). Cindy trained as an occupational therapist and has many years’ experience of working with older people and particularly those living with dementia.
Cindy says: ‘People with learning disabilities need more opportunities to talk about dementia to understand what is happening in their life or in the lives of family and friends. I believe groups can be a supportive and fun way for people to understand about the experiences of others as well as developing their own ways of coping with things they are finding difficult.’
Toby has many years’ experience of working in and managing frontline mental health services, research, evaluation, practice and service development, and policy work, and for the last ten years has particularly focused on dementia and the Mental Capacity Act. He has particular expertise and experience in rights, values, social inclusion, empowerment and working with seldom heard groups.
Toby has worked with Together Matters to develop ideas about how people with learning disabilities can be supported to make decisions in their lives.
Toby says: “Issues such as values, rights, inclusion, equalities and community are important for all people whatever their disability or health condition. It’s important to form partnership and alliances to work positively and campaign on these issues. And it’s really important always to support people, whether they have a learning disability or dementia, and their families and friends, to be at the centre and in the driving seat of this work.”